It’s the theme of the day. It started last night, and it hasn’t stopped yet. Usually when Jace’s tummy hurts, he likes to bath. Last night I read 10 books to him while he relaxed in the tub. This morning he has bathed twice already, and I’ve warmed numerous ‘rice babies’ to rest on his aching body. Hopefully we can find another magical remedy soon—like the ones we keep stumbling upon that relieve his stomachache and help him relax. Anyone have any suggestions? Many of you have commented on the size of his cheeks “going down.” FYI: Jace weighed 56 lbs. on September 11 when he was diagnosed with Leukemia. He gained 13 lbs. the first month while he was on steroids-- to take him to 69 lbs. Now he is back down to 60 lbs.
We did go to Primary Children’s Hospital Monday for Jace to receive treatment, and it went smoothly. We were even home in time for Hayden’s basketball game that night. Jace decided he’s not scared to go to the doctor or hospital anymore; he’s just annoyed. He told me, “The only good things about the hospital are the XBox and Dr. Barnette.” Matt and I also appreciate the energy Jace’s doctor at Primary’s has. He is optimistic and fun for Jace, and he knows his stuff. I, on the other hand, keep thinking I know what’s coming but was surprised to learn that in addition to his “every ten day treatments,” Jace will have a few PEG shots and Lumbar Punctures thrown in there. Just when I think I understand what is in store for us, I find I’m wrong.
Although Jace held a bag in front of him for the first hour driving home from Salt Lake, he was able to fall asleep and the rest of his ride was peaceful. The silver lining for us today is that Jace IS home. We aren’t in a hospital. Jace is able to relax on his own comfy couch…and when his “tummy really hurts” we get to hold him.
(waiting for chemotherapy)
(being accessed and having blood drawn)
