We continue to receive help and donations from you, and we are overwhelmed with gratitude. Among the greatest gifts you've given our family is help for me to stay home with Jace. Today we sent daddy to work and Jace and I spent a tender day together as we paid attention to each of his new aches. His jaw hurts (bone aches), his skin is dry (chemo), he's sick to his stomach (chemo), and he broke out again in hives (platelets- I think). Despite these hurts, and his fighting attitude, Jace is still charming and sweet.
One of my favorite songs for a long time has been a Christian and Gospel work by Mindy Gledhill called: Small Enough. If you've never heard it, I recommend the download. In months prior to Jace's diagnosis we listened to this song almost every day while I did my make-up in the mornings, and he bathed in my bathtub. He's quite a singer, so it won't surprise you that he knows every word. This morning I went to check on Jace in my shower, and I found him sitting in the bottom of the shower, against the wall, singing these lyrics:
Oh great God, be small enough to hear me now.
There were times when I was crying from the dark of Daniel's Den
And I have asked You once or twice if You would part the sea again
But tonight I do not need a fiery pillar in the sky
Just want to know you're going to hold me if I start to cry
Oh great God,
Be small enough to hear me now...
As I waited for him to finish, I sat on the side of the tub and was again amazed at his strength. He has such a strong spirit of faith and determination. It's pretty crumby that maybe part of his illness is to strengthen all of us, but I don't think he minds sharing lessons learned. He does hate being sick though. We actually went for a small drive today, because he's not used to being indoors so much. Our front porch has become our favorite place, and Matt held him in the porch swing for a while tonight.
Jace's allergic reaction this morning wasn't as bad. He was so scared he'd have to go to the hospital; he was relieved and grateful he could just take a spoonful of medicine. Tonight we are grateful for Benedryl, friends, and a loving Heavenly Father who we know hears and answers prayers, but I'm not sure I'd call the kind of power we are feeling "small."
Oh, and guys, don't worry. Just for the record, he also sings a killer chorus of, "I AM IRON MAN."
Tuesday, September 22, 2009
Subscribe to:
Posts (Atom)