We continue to receive help and donations from you, and we are overwhelmed with gratitude. Among the greatest gifts you've given our family is help for me to stay home with Jace. Today we sent daddy to work and Jace and I spent a tender day together as we paid attention to each of his new aches. His jaw hurts (bone aches), his skin is dry (chemo), he's sick to his stomach (chemo), and he broke out again in hives (platelets- I think). Despite these hurts, and his fighting attitude, Jace is still charming and sweet.
One of my favorite songs for a long time has been a Christian and Gospel work by Mindy Gledhill called: Small Enough. If you've never heard it, I recommend the download. In months prior to Jace's diagnosis we listened to this song almost every day while I did my make-up in the mornings, and he bathed in my bathtub. He's quite a singer, so it won't surprise you that he knows every word. This morning I went to check on Jace in my shower, and I found him sitting in the bottom of the shower, against the wall, singing these lyrics:
Oh great God, be small enough to hear me now.
There were times when I was crying from the dark of Daniel's Den
And I have asked You once or twice if You would part the sea again
But tonight I do not need a fiery pillar in the sky
Just want to know you're going to hold me if I start to cry
Oh great God,
Be small enough to hear me now...
As I waited for him to finish, I sat on the side of the tub and was again amazed at his strength. He has such a strong spirit of faith and determination. It's pretty crumby that maybe part of his illness is to strengthen all of us, but I don't think he minds sharing lessons learned. He does hate being sick though. We actually went for a small drive today, because he's not used to being indoors so much. Our front porch has become our favorite place, and Matt held him in the porch swing for a while tonight.
Jace's allergic reaction this morning wasn't as bad. He was so scared he'd have to go to the hospital; he was relieved and grateful he could just take a spoonful of medicine. Tonight we are grateful for Benedryl, friends, and a loving Heavenly Father who we know hears and answers prayers, but I'm not sure I'd call the kind of power we are feeling "small."
Oh, and guys, don't worry. Just for the record, he also sings a killer chorus of, "I AM IRON MAN."
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Amy Thanks for posting with the update. Hold on to those speical moments!! And remember them at times when things are hard. Want to remind everyone about the Fund Raiser Lunch @ HK tomorrow from 11-1. Our love, prayers and thoughts are with you always. Brent and Maureen
ReplyDeleteI am so proud to be from that small little town and a Hibbard girl to boot. I am so happy that everyone is pulling together to make life easier for you. Hugs...
ReplyDeleteI am listening to the song you suggested. :0) Thank you so much for sharing it. I've never heard of it before. That was a good way to end my night and get ready now to go to bed. Be Keeping you all in my prayers.
ReplyDelete-Stacie Jones Larsen
Jace is such a sweet boy! Hope everything is going well! I will have to listen to that song! If Jace is craving anything at Arby's I work tomorrow night! :) Keeping you in my thoughts and prayers! Missing you! Have a good day tomorrow and get some rest! Stay strong!
ReplyDelete~Chelsea
Amy,
ReplyDeleteJust listened to "Small Enough" on utube with a video that someone put together to it....beautiful words. Thanks for sharing that message. And for Jace singing...I remember a song the Stk Pres and some children sang in our Sacrament Mtg...he being one of those children and I've heard him in Primary..He is a good singer...must get it from his mom :)
Each day at school I look at the remaining posters on the wall and think of Jace and say a prayer of continued strength for him and you. I remind myself that this life wasn't meant to be easy but we are promised it will be worth it!!! It seems some have to endure a little more than others but the foundation of faith will be deep rooted.
Keep singing Jace, music is a wonderful healer and comforter.
Have a great day. Go!Fight!Win! Tami Clements
Thank you for the lessons learned. I know our family has grown a lot with you. I am sorry that Jace has to be sick for us to learn and love so much but it has been a great thing for me to watch everyone cirlce your family with so much love! We love you so.
ReplyDeleteI've never heard that song before and it is beautiful. Thinking of Jace singing those words made me cry. What a strong little guy he is physically and spiritually! Thank you for keeping the blog and helping to strengthen all of us. I hope that the day goes well for you.
ReplyDeleteAmy, thanks so much for posting that song! It's so great...it really touched my heart and was somthing I needed to hear today. I've listened to it all through my prep hour! Thanks for sharing your story and your challenges with us. Your family is in my prayers. And just to say again, your Hayden is a sweetheart. I love when he comes to my room. love, Megan Harris
ReplyDeleteAmy and Matt, I hope you don't mind. I published a story about Jace at rexburbia.com. Emily said you wouldn't care. If there's anything you want me to add or change please tell me (www.jennaloha@live.com). I am so moved by your blog. Thank you for sharing your journey.
ReplyDeleteIt touches this mother's heart and I have, and will continue to pray for your angel boy.
Jenna Shirley Scoresby
Sorry, I made my email a web address- obviously, you don't type in a www to email somebody....
ReplyDeleteI just think it is amazing that you have prepared Jace for this difficult time. You have taught him songs and values that he can now recall when he needs them most. I know you didn't see it coming but you prepared him just by following the councel of the prophets. Primary songs and spiritual music are gospel doctrine for kids. You are an amazing example of great parents. It encourages me to keep up with that early morning scripute study with my kids.
ReplyDelete