(I started typing last night, but never finished. Here's a post from last night and this morning). It feels like a year since we've been here. Tonight we walked into a sparkling clean, disinfected, heaven on earth. I'm not sure I want to know how many people saw the nooks and corners of my house, but truthfully my pride went out the window about 6 days ago. Thank you all for your hours of service. We know how giving you have been.
As we arrived home a few close family members met us in the drive-way, cheering and offering support. Upon entering the house everyone was careful to use hand disinfectant, and a few close, healthy cousins gathered around Jace in a tip-toe sort of way. He was quiet, yet relieved-- to see that life was pretty normal. After showing off his syringe water squirting skills from the front step, he sat on my lap. Everyone said good-night early, and left us to enjoy the perfect weather and pretty sunset. It was interesting how strongly I felt the spirit sitting on my front step with my little boy. Two weeks ago he was running across this lawn squealing with his cousins. Two months ago he was practicing catching the baseball with Matt and Hayden.
When I suggested we go inside, Jace wanted to stay. We were facing west and we watched the orange fade from the sky. He cradled his head in my neck and told me I was the best mom ever. It's amazing that in times of his illness he is reaching out to everyone else. When he sees me cry a little he says, "Moooom! You're ok!" We made a little deal in the hospital that if he'll let me cry, I'd let him cry. It's proving to be pretty effective.:)
We haven't seen the news story or Hibbard pep rally for Jace. Emily taped them for us and brought them over so we'll watch them in a few minutes.
This morning we are boiling eggs (Jace's latest craving). He's sitting next to me on the couch, running his fingers through the back of my hair, while he watches television. He is weak and and tender, and so precious. After a good night's rest, Matt and I are energized and ready to tackle the day. Matt is taking some of the cash we've received (from you) to fill his Wal-Mart cart with paper towels, hand sanitizer, masks, lots and lots of liquids, and olives.
We love you all.
Thursday, September 17, 2009
Hope, Faith, and The Grace of God
You'll never believe where we are going... Your prayers and faith have made it possible for my little family to be together in our own home tonight.
Jace received chemo this morning, and we were discharged after they observed him for a few hours. We will be giving his meds to him over the weekend, and won't go back to Primary Children's until Monday. That means four nights in our own beds. Sooooooo...all of you faithful followers....is now a good time to ask you to let us rest? Heheh. We want to see all of you so much, but Jace is officially immuno-compromised. That means, his immune system is not capable of functioning properly. We have to keep him from being exposed to any kind of infection or sickness.
With that said, let me express our deepest, most sincere thanks we can offer. We know it is through the entire community of family, friends, Hibbard wards and others, HK, Madison School District, and everyone else praying, that our little Jace isn't sitting in a hospital bed right now. We have a long road ahead of us, but we know with your support we are going to win this battle with Leukemia. (When I get weak and have days of doubt please remind me how strong I'm feeling now. )
This morning the Salt Lake Fire Department came to Primary Children's Hospital for Jace. They let him get in their truck, start the engine and blow the horn. As he sat in the driver's seat I thought of all the effort the firemen made to get to the hospital, and I knew I could times that by ten to compare it to what is happening in our own community. Thank you, thank you.
When Jace climbed out of the fire truck he looked west over Salt Lake. He reached his arms up for me to carry him, and as I gathered him he whispered in my ear, "Mom, look at the view." I nodded with tears in my eyes knowing his sweet spirit will carry him. The view is sometimes clouded with hospital walls, but not tonight. Tonight we will be home...and very grateful.
Jace received chemo this morning, and we were discharged after they observed him for a few hours. We will be giving his meds to him over the weekend, and won't go back to Primary Children's until Monday. That means four nights in our own beds. Sooooooo...all of you faithful followers....is now a good time to ask you to let us rest? Heheh. We want to see all of you so much, but Jace is officially immuno-compromised. That means, his immune system is not capable of functioning properly. We have to keep him from being exposed to any kind of infection or sickness.
With that said, let me express our deepest, most sincere thanks we can offer. We know it is through the entire community of family, friends, Hibbard wards and others, HK, Madison School District, and everyone else praying, that our little Jace isn't sitting in a hospital bed right now. We have a long road ahead of us, but we know with your support we are going to win this battle with Leukemia. (When I get weak and have days of doubt please remind me how strong I'm feeling now. )
This morning the Salt Lake Fire Department came to Primary Children's Hospital for Jace. They let him get in their truck, start the engine and blow the horn. As he sat in the driver's seat I thought of all the effort the firemen made to get to the hospital, and I knew I could times that by ten to compare it to what is happening in our own community. Thank you, thank you.
When Jace climbed out of the fire truck he looked west over Salt Lake. He reached his arms up for me to carry him, and as I gathered him he whispered in my ear, "Mom, look at the view." I nodded with tears in my eyes knowing his sweet spirit will carry him. The view is sometimes clouded with hospital walls, but not tonight. Tonight we will be home...and very grateful.
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