We've learned to be creative about giving meds to Jace. For the last 1,106 days, Jace has had AT LEAST two pills of chemo meds to swallow every single day. On his worst days though (Thursdays of Chemo weeks) he swallows 21 pills: 12 Methotrexate, 2 6MPs, and 7 Dexamethazone. In the beginning at Primary Children's Hospital, they taught us to poke his daily pills into a spoonful of chocolate pudding. After his first year of this, he started getting a taste aversion to chocolate pudding. (I wonder why?? ha ha). Next it was yogurt, but then we learned that the 6MP wasn't suppose to be given with milk. Oops...So, for the last year, we've used applesauce.
Today I bought the last applesauce we'll need.:) I started figuring it out, and as I placed some applesauce in the cart, I went to reach for another one. Then I stopped. We won't need more. Right in the middle of Wal Mart I almost did my own happy dance. It sounds stupid, but for the first time, I smiled a genuine smile realizing that this chapter is really ending. Actually, is the book in it's final chapters? I think my students should recognize this as the falling action...:) (While I'm thinking about it, can anyone tell me how to print this blog into a hard copy book?)
THANK you for the great feedback about a celebration. With a combination of ideas, and many encouraging words...:), we ARE going to have an "Up with Cancer" party the evening before Thanksgiving. Everyone is invited. Please, please save the date, and spend November 21 with us in Rexburg. (IF you'd like to help, email me or leave a comment. My mother-in-law, Joan, graciously agreed to be the Party Planner, so she will coordinate efforts.:)
A tentative agenda includes:
*A blood drive that day for those interested (Jace definitely used his share of donated blood, so it would be nice if we could give some back...)
*A service project (Or several? Any ideas?)
AND THEN...
*A balloon launching at sunset.... in honor of JACE, a sign of victory for other people who have won their fight against cancer, and a remembrance of those who have passed on. (As we get closer, I'll post the details of location and time.)
AND
*If you can't come, we really, really, really want you to launch a balloon WHEREVER you are. Take pictures too and email them to us?
Jace has two more months of applesauce and chemo treatments: October and November. We will go to Primary Children's Hospital for the next one, and then we'll finish in Rexburg in November. Shortly after his November treatment, we'll schedule the surgery to remove his port.:) By November 21, he should be feeling better and ready to celebrate. Can you believe it? I'm kind of doing another happy dance right now...:)
When I asked Jace if it was ok if we celebrated, he shrugged his shoulders a little-- and smiled.
"You can invite anyone you want..." I coaxed.
"Ok," he replied thoughtfully... "Let's just invite EVERYONE actually," he added.
My eyes filled with tears.
Done.
See you there?
Oh, and just for the record... we WON'T be serving applesauce.:)
Saturday, September 22, 2012
Subscribe to:
Posts (Atom)