Sunday, February 26, 2012

Thank You

Thank you for your honest, sincere thoughts. If you are really reading then I'll continue writing publicly, and with your permission I'll vent once in a while too.  My heart is full with the kind things you said-- so in a few months I may need you to mass comment just to buoy me again.:)  Although in most situations I've appreciated the lack of conversation when it comes to Jace,  once in a while it's nice when someone acknowledges that he's still in treatment. Hands down the most common comment I hear about Jace is, "He looks so good! He's not still having chemo is he? I thought he was over that."

We did leave his February treatment counting on TWO HANDS the treatments he has left: 9 months; 3 LPs and 9 total IV Vincristine treatments....woo hoo!  The talk lately with the doctors is that of removing his Port-a-Cath.  Jace wants to play Grid Kid Football this fall, but he has that dang Port sticking up and off his ribs. I have really been campaigning steadily against football- but what do moms know?  I also thought BOTH docs would be on my side, but when I gingerly asked them (in front of Jace) if..."Tennis isn't a better option? or Golf?..." every man (including Hayden, Matt, the Docs, and Jace) in the room acted like the traitors they are and said football will be fine!

Jace's awesome nurses have also been talking to him about making a "WISH."  We were told in the beginning of treatments that Jace would be a candidate for "Make-A-Wish," but we really have been so consumed with treatments and life-- that we haven't given it much thought. Even now, Jace is having a really hard time concentrating on it.  His very first response to...If you could have anything in the world, what would it be??? was: "I wish there was no cancer."


There was a cute toddler finishing his last chemo treatment at the doctor's office the last time we were there. The nurses brought the boy into Jace's room and introduced them.  I watched as Jace sat up to talk to the two-year-old, and I cried a little when Jace talked in a soft, cute voice looking directly into the little guy's eyes.  Then Jace reached his fist out and pounded knuckles with his cancer brother.   Talk about powerful.

Thank you again for staying with us. I quit Facebook, but if you don't comment here, I'd love to hear from you via email:  mattnamyleigh@msn.com

Love you all.