Friday, September 11, 2015

SIX YEARS from Diagnosis and Counting


People still sheepishly inquire about Jace’s health and then awkwardly apologize in the same breath. I recognize the risk in asking, because if Jace wasn’t doing well, it would be a difficult conversation. Let’s clear this up though. He is doing AMAZING. Please never hesitate to talk to us about our Ironman.  

Lately, I have had the annoying impression that I need to open Jace’s cancer blog again, although it is still quite difficult for me to look back on and read. Reliving the experience is uncomfortable and heart wrenching. Erring on the side of detachment and denial, I convince myself that I can lock our story away, pretend it didn’t happen, and put up a façade of infallible strength. I even detach myself from other cancer stories because, quite honestly, I don’t have the emotional energy to go through it one more time. Denial takes over when I have impressions to share. Faithful Jace blog followers continually encourage me to open the blog again, but I talk myself out of it by saying (sometimes outloud): “Really? Who cares?” 

 But then once in a while (like last night), Jace quietly asks…

“Hey Mom, did I almost die?”  

And I have to respond, “Yes, honey, almost.”

And then Jace pauses for a few seconds to let it sink in, and he asks even more reverently, “Why didn’t I?”

And I have to pause, because emotion floods my eyes, and I try to explain to him that I don’t know why some cancer patients return to Heavenly Father quicker than others. I try to explain to Jace how maybe he still has a purpose on this earth to fulfill. I try to explain that his courage through treatment encouraged others, and he didn’t go through his battle alone. A lot of people learned and grew with him, and a lot of people can still find strength in his story. I explain to him how he still has an army behind him who grew to love him through his battle, and who still silently watch him grow and achieve.

So, because it won’t leave me, and because Jace has a story, and because Hayden has a story too, and people still want to know… Surprise! Here’s a blog update.

Jace started 7th grade this year. It's pretty awesome for him to be in a school where he's never been the cancer kid. He loves baseball and football. He still takes care of his momma, and he sits close to me when we watch movies together. He loves to hunt with his dad and hang out with Hayden. He's brilliant, bossy, and beautiful... But of course I will always think so. He's an excellent student, and he's in 8th grade math. He loves his cousins and his baseball families. 

I can also finally talk about Jace without totally crying (Jenny Steiner, I know you don’t believe that by the way I cried a little Wednesday as Jace ran in another touchdown…haha). Mostly I cry grateful tears (@ least once a week) that our Ironman  is upright. It has taken  this long after his treatments for me to open up, but I want to share and be here if anyone needs me. I’m so grateful for the support we felt during Jace’s treatments, and then through Joan’s, and now through my dad’s.  Although it has taken six years to finally be ‘almost emotionally stable’ enough to be a resource…I’m here if you need me.:)

Oh, and thanks to the experiences of a great mother-in-law and an incredible dad, I now understand other kinds of cancers too…so yeah. I’m kind of an expert.;) Please comment, message me on FB, or find me on the sidelines at a game if you ever want to talk. 


Love you all.
Amy