Monday, Jace awoke with a fever. We were in the mountains camping, so I thought maybe he was just worn out. He’s also cutting a tooth so, I thought it wasn’t a big deal. We gave him Ibuprofen and he acted great. That night when we returned home, he was too tired to help unpack. I even gave him the fun job of washing the four-wheeler, and I found him sitting on the side of it, leaning against the seat.
Tuesday morning he acted great, so I sent him to school. That afternoon when he returned home, he had a fever again. Ibuprofen again. No big deal. Normal when you are getting teeth.
Wednesday morning I had an early morning meeting. Mom came over and fed the kids and put them on the bus. I called her at 8:30, and she said, “Jace didn’t look very well…you better check on him.” I drove to the school and picked him up. On the way to the doctor, I looked over and realized he was very pale. They checked for the flu and took blood. No flu- no infection. But, “The Red Blood Cells are too low.” They told us to go home: they would run more tests and call us. At 4 PM they called and said it was Mononucleosis. “Make sure he gets plenty of rest and fluids.”
Thursday morning, the doctor called. He said, “I’m worried about that little guy. Let’s check his blood again and see what it’s doing this morning.” The results were the same as the day before. Apparently there were two tests that had been sent to a Boise lab, but we wouldn’t get results until Friday. Matt took the day off, and I went to work. Matt and Jace rented movies and Wii games and had a good boys’ day home. Jace was pretty mellow with a raging fever though. Tylenol and Motrin didn’t touch it.
Friday morning (9-11-09) Matt went to work, and I stayed home with Jace. Around 10 he decided he wanted to bath. Normally he spends an hour in the bath if I let him, and after three songs on his Primary CD, he was ready to get out. He was shaky and he had to sit down, wrapped in his blanket, on the toilet. He said, I’m so dizzy mom. I helped him comb his hair and brush his teeth, and I had to carry him back to the couch. He said he heard a hissing in his ears. He even said, “I don’t want to die, mom.” Kneeling in front of him I assured him he wasn’t going to die.
Friday afternoon Matt came home for lunch to check on things. While he was there, I called the doctor again. Dr. Speakman said, “I’m just looking at his file right now. I think you better bring him in again.” When we arrived they drew more blood. They also did a chest x-ray and a urine test. Both looked fine. We also learned that while we were on our way to the office, the pathologist from the Boise lab called and was concerned. He said the red and white blood cells were too low, and the platelets were also abnormal. This alarmed Dr. Speakman, and he referred us to Dr. Hancock, an Oncologist in Rexburg. Dr. Hancock was off for the afternoon and still asked if we could come in. We met him at his closed office at 3:15 PM.
“Ratios bad…proportions aren’t right…virus causes one to be out of whack…leukemia causes all to be low…Primary Childrens …calling to see if they have a bed…get him on an IV tonight..draw blood to see if you can transport him...Jace has Leukemia.”
4:30 PM we go home… to Randal, Hayden, Wayne, Vicki, Emily B, Laura, Dayton, Carson, Skyelar, Daisy, and Gabriella. After hugging my dad, I went straight to the shower so I could cry. Matt went outside to talk to Randal and Wayne. Vicki, Em, and Laura packed our bags. Matt, Randal, and Wayne gave Jace a blessing, and we were out the door.
We are driving now. It is 8:03 PM. Matt and I take turns crying. Everyone is calling. Hayden has a scared look in his eyes, and Jace is finally asleep. He’s had blood drawn 5 times in the last 60 hours. He cried worse every time. The last time at 4:15, Matt and I were both crying with him.
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Amy and Matt, I can't even find the words to tell you how I feel. I hope you can feel my arms around you giving you a giant bear hug. You are in my thoughts and prayers. Will you give Joan my cell phone number and ask her when she gets a chance to call me so she can keep me updated. My number is 351-1417. I sure love you guys and will do anything to help.Love ya, Kristi
ReplyDeleteAMY, MATT, AND JACE,
ReplyDeleteI AM SO SORRY TO HEAR OF JACE'S ILLNESS. ALL OF MY PRAYERS ARE WITH ALL OF Y OU. IF THERE IS ANYTHING I CAN DO FOR YOU ON THIS END, PLEASE LET ME KNOW.
KEEP POSITIVE THOUGHTS!
ALL MY PRAYERS
JOAN CICHOS
Matt & Family, I was just preparing a church talk for tomorrow about adversity. I can't imagine the fear and uncertainty you are now experiencing. All I know is that you must rely on your faith and knowledge of God's love and eternal principles. You're loved ones will provide additional love and support. I am reminded of all the ways we are tested and tried, yet we feel so very unprepared when the trials are actually ours. So many questions and so few answers. May the Lord's love comfort and strengthen you through this time of trial and adversity.
ReplyDeleteKurt Hanson
We are praying for Jace! Let me know what I can do for you and your family. Seriously, anything....
ReplyDeleteI have been reading your story....I am crying and crying....
ReplyDeleteI wish I could do something!!! You and your family are in my thoughts all the time.
Primary Children's will take exellent care of you as we know from experience. Our thoughts and prayers are with your family. Jace is a strong little guy. I loved how you said he was worried about you, Amy, and rubbed your back. How precious! Know that our entire family has you in our thoughts and prayers.
ReplyDeleteWe love you guys! Byron & Diann
JACE man im so sorry i love you dude keep on being tough k. you im my prayers. love you man
ReplyDelete-Justin Edelmayer
hey jace im sorry you got sick ilove you. you are the tough'st kid i know what can i say your ironman! love/Branden Edelmayer
ReplyDeleteJace, do your best-keep your spirits up! The Morales family is rooting and praying for you. If there is anything we can do for you and your family dont hesitate to let us know. KEEP UP THE COURAGE!!
ReplyDeleteWITH LOVE, THE MORALES FAMILY
Hey Jace, Matt, & Amy
ReplyDeleteOur family just wanted to let you know that you are in our prayers. There's not guy around as strong as you are. We know that God is right there by your side. Ty (Timothy) says to hurry and get better so that you can play football with him again. Please know that we are thinking of you and all of our prayers are with you. Your family was so good to ours a year and a half ago. Now it is our turn to return the favor. Let us know if we can help. We will keep in touch with Melissa.
Love,
Clint, Trina, KaLee, & Ty Olson
This is Mr. Shirley, your principal. I felt so bad when I heard about your illness. Don't worry about homework or anything like that. Your job is to get better. We can help you catch up later. We miss you and wish you the best.
ReplyDeleteFor Amy & Matt. I know about hospital rooms from spending night after night all summer long wondering what was going to happen and how to deal with the pain. I had three different surgeries on my back, with disk and nerve problems that complicated everything. I am still undergoing a very slow and painful process.
I know how the days seem to mesh together and how I had to keep asking what day it was, because it all seemed like an unreal, unending nightmare.
The main thing that kept me going, and continues to the present, are the words of Paul in II Corinthians: 12. Paul had a thorn in the flesh, which was given him "lest he be exalted above measure." We don't know what that thorn was, but we know he asked the Lord three times to remove it. I felt like I had asked 3 million times, but nothing happened. Then, as I read more he said that there are times the Lord, in his wisdom, leaves the thorn because without it we would not be able to learn what was needed. He said that the power of Christ is made manifest in weakness, and that when we are weak, then are we strong. He says he will glory in adversity. I'm certainly not there yet. I haven't been able to be thankful for the pain and suffering that goes with major surgery. But, I know that it is worth it. I know that the long dark hours of the night will end. The Lord suffered the sum total of all pain, both mental and physical so that he, more than anyone else, could comfort us and make the pain bearable. Though I suffered many nights in the hospital, I never felt alone.
My brother went through some severe tests. I asked him how he managed the pain. He said, "I know the the Lord will not give me more than I can handle, so I am humbled and gratified that he trusts me this much."
Know that all the students and teachers at Hibbard are following this closely. We are cheering and praying for you. You are in our throughts and prayers continually.
Sincerely,
Scott Shirley, Principal, Patient and Friend
Jacer - Katelyn is ready to protect you in the spook alley at Lagoon whenever you are ready :)
ReplyDeleteWe are all praying for you, Hayden and your parents!!! We want you to know we love you!!!
Love the Lords
Just learned of Jace's illness. Want you to know our love, thoughts and prayers are with all of you. Glad to do anything we can on this end to help out. Marvin and Phyllis Jones
ReplyDeleteJace,
ReplyDeleteFrom everything I hear from the Anderson's, Zach Andersons family (and oh yeah Hoosier) you are truly a ironman. My favorite sport is football so when you get to feeling better I want you to tell me who your favorite team is? Tell your mom and dad the Nebeker family in Golden, Co is praying for you and your family.
Dear Amy, Matt, and Boys! I have been thinking about you since I heard about Jace this morning. Please know that we are all so concerned and want to help out in any way we can. Let me know if I can help with your classes, lesson plans -- anything!!
ReplyDeleteYou two are such great parents and have a remarkable family. We are so proud of you.
Hugs to all of you.
Judy and Richard - and English friends:)
Matt, Amy and Jace,
ReplyDeleteI wish we could make it all go away....Just know there are so many thoughts and prayers in your behalf. You're going to beat this Jace! The odds are in your favor. Be the strong,
courageous stud you are and beat this nasty
disease! Guess what? All of the Grid Kid teams are playing for you this week!!! We are
having some cool stickers made up that say "ironman Jace" that each player will wear on their helmets. We will take some pictures and send to you and we will also send you a sticker OK! Hang in there buddy and get well!
Matt and Amy - you two are such a strengh to so many. Continue to be strong and know of our love for you and your family.
Love, Marsh and Jamie
Matt, Amy and Jace,
ReplyDeleteI just heard about Jace's illness. I want you to know that Jace will be in the Fullmer family's thoughts and prayers until he recovers. Twenty-five years ago my nephew battled leukemia and lymphoma within a four year period. The treatment at Primary Children's Hospital was good then. I'm sure it's much better now. This nephew has served a mission and is married and living in SLC.
I've always admired the winning attitude of the Leatham and Grover families. Jace has a great support system and the faith to get him through this illness. Please let me know if I can help in any way.
Rex
Amy,
ReplyDeleteThis is Amie--Valerie's daughter. I just found out about your blog and read it today.
I'm sure you know this, but I am a childhood cancer survivor. (I'm actually wearing one of my "survivor" t-shirts today.)
First off, I want to tell you how much I admire your strength. My mom is one of the strongest people I know...she had to be to endure the emotional pain of my cancer treatments. I was only five years old at the time, and don't remember much, but she was with me every step of the way. Moms do that.
Secondly, I wanted to tell you how great you are for writing all of this down. When Jace is older and wants to read about this, he will be so grateful that you shared your emotions and thoughts. My mom's thoughts about my cancer treatments make it more real for me.
Thirdly, I know that prayer works. Keep the faith, and the Lord will carry you when you feel like you just can't go on. You'll be in my prayers.
Matt, Amy, Hayden and Jace
ReplyDeleteHello you guys we just wanted to check in with you guys and let you know that we are thinking and praying for you every day. And if there is anything at all we can help with let us know.
So i'm working at Broulims now as a checker so you will have to come in when you guys get back. And boy oh boy has it taken alot to get use to standing in one spot for 8 hours...
So Arthur had Jace's name number and iron man written on his arm yesterday, he was very proud of it. Like I said before we have so much respect for your family you guys are AWSOME. And Amy it's OK not to hold it together all the time. Let it out as much as needed. It doesn't make you weak, your just a loving mother. We are so greatfull to know you all and thank you for never judgeing us. I don't think I spelled that right oh well i guess. Hope to see you you all soon. And Arthur stillwants Haden to come stay the night over here. But I heard you guys will be home this weekend so we may have to wait.
With Lots of Love from - The Morales Family
I stumbled upon this on my friends facebook and thought i'd leave a message, i had brain cancer when I was six and know exactly what he's going through i had a port in my left side had cemo and radiation therapy missed all my kindergarden year of school but i just want you to feel the way I did with support and friends every where.
ReplyDeleteSean steele
Jace, its Jaxson. How ya doing? I here your home,thats great!I can tell Hayden's happy.Me,Devan,Reiley,Kyler are all glad you're home I bet you are too!!!
ReplyDeleteLater
Jaxson
Amy,
ReplyDeleteI don't know if you remember me, but as your student, you truly touched my life. When I heard about Jace my heart broke. I've spent the last hour reading your blog and adding my tears to the thousands of others that have fallen. You are an incredible woman who has touched so many lives and I know that Heavenly Father will bless you. Some times it helps me to remind myself that our time here is but a small moment and that our sorrows and our trials in this small moment become our greatest victories even though this moment often feels like an eternity. You and your sweet family are in our prayers and if you need anything- we are only a couple of hours away in either direction (we are in Logan). love Melanie Griggs Eppich
Jace,
ReplyDeleteA few years ago I spent 35 days in the UCLA hospital being tested and waiting for brain surgery. Looking back it was one of my most treasured memories. I came back stronger and better than ever, even though they could not cure me or give me surgery. Jace you will continue to find strength, not necessarily physical but definately internal. You will touch lifes you didn't even know you knew. Fight like a champion and you will always be one. PS I had fun with my nurses when i felt good I would tease the it made my day go faster. If you ever just want to chat about laying in a hospital bed. Email me and I will give you my number. Sometimes it easier to relate with someone who has been there. Rock on Ironman
Tami Hymas and family Ben Brittany & Cole