Sunday, November 22, 2009

Finally! A New Post

I know you want an update, and you were relieved to see a title other than “My Tummy Hurts” at the top of the page. Yesterday at least five people asked me when I was going to “post” again, and I felt guilty last night for not keeping current. One person even asked, “Are you going to stop doing the blog?” The answer to that is no. I won’t stop doing the blog. I will continue to post as long as it takes to get Jace completely through Cancer and Chemo. Mostly for selfish reasons, I want a record of the whole journey, and I’m sharing it with the public, so we can continue to receive prayers. The problem is that not much has changed since I posted last. Jace’s tummy still hurts—especially in the mornings, though he’s been feeling progressively better every day since treatment.

Monday we did receive permission to let Jace go in public a little more. As long as his ANC is above 1,000 or (1.) he should be better equipped to fight infection, and this week he is 1.14. Jace is especially glad to be able to get out of the house, and he even talked Hayden and me into going to a movie on Thursday afternoon. We went to the 4 PM showing of A Christmas Carol, and it was intense. Even though he probably didn’t need to, Jace wore his mask until we reached our seats, and I took my hospital strength disinfectant and sprayed our chairs and armrests (yes, the boys were embarrassed by their obsessive mom). It turned out wonderfully though, because we were the only three people in the theater, and I didn’t worry the whole time about someone coughing on us. Although we bought Jace his own child’s pack popcorn and drink, we had to dump the popcorn out, and he held the box in front of his face for the better part of the movie because he thought he would be sick. Despite the changes our movie attending days have taken, it was good to get out of the house.

Last night we also went to our friends’ house. Jace started on the toilet with a bowl in front of him, and ended  on the couch—pale and worn out, but during the three hours in between--  he was running around like a madman. He and his cute friends played Uno, Foosball, Volleyball, and “torment the adults.” It made me realize that although Jace has bad minutes, right now he has way more good minutes…which turn into hours…that take us closer to that beautiful day in the future when Jace is completely well. Tonight I'm grateful for good minutes. Two months and eleven days down…we can do it.

9 comments:

  1. We were excited to see the update! I think we all understand if you skip a few days every now and then with the posts. We'll keep praying for more good minutes! Love you all!

    ReplyDelete
  2. Keep hanging in there Jace!!! Every minute that passes means you are that much closer to being back to your "normal" self. You will get back there...only stronger!!

    ReplyDelete
  3. Keep it up!!! Before you know it you'll be into maintenance and things will be much more 'normal' and not so sick feeling all the time. So glad to hear Jace's energy is going up and you guys got to get out of the house for a bit. (as much as you want to keep him in a bubble) :) Lots of prayers being sent your way!!!

    ReplyDelete
  4. Hi Amy! As always it was so good to see some "news". i am glad to hear that Jace has had a chance get out for a while. I'm sure that helped all of you. I continue to be amazed at your strength and your faith. We love you and are still praying for you all.
    Stacie

    ReplyDelete
  5. It was so great seeing you and your handsome boys at the movie theatre, even if it was only for a minute. I can't get over how tall Hayden is! Holy smokes.. Anyways we love you and your family so much and you'll always be in our prayers..

    ReplyDelete
  6. Amy and Jace, Think you're doing a great job with the blog, we check it everyday, I mean wow, you guys are almost up to 70,000 visitors! That is a lot of prayers coming your way. Jace, trying to keep the boys healthy so that we can see you again. Looking forward to a cold turkey bowl, invite cousins if they want to come!
    Jen and Boys

    ReplyDelete
  7. Hey, guys we all had alot of fun the other night and need to do it again! Thanks for being such a great example to all of us Jace! You truly are our hero!
    Love you all,
    Sam

    ReplyDelete
  8. Amy, thanks for the update. I am glad that Jace is able to get out a little more. We still love to check up on his progress and see how you all are doing. Keep it up.

    ReplyDelete
  9. Just wishing you a wonderful Thanksgiving! Love the Perkins

    ReplyDelete