So today is another “new normal” day. We did homework for a few hours already this morning, and we are going to try a little walk in a while. Thank you all for your continued prayers. We feel them every minute. I guess it’s true that life has to change a bit for an individual to grow. Well, ours is nowhere close to the life we knew just two months ago- and we are growing in ways I never wanted to grow. But our “new normal” is precious and tender, and I’m so grateful for the testimony I have in a loving God who strengthens our family and makes it possible for us to survive this crazy new norm.
Wednesday, November 4, 2009
New Normal
A very wise friend asked me last night if things were back to normal at my house. Then he rephrased by saying, “I mean new normal.” It struck me as just the right phrase to explain this week. I also really appreciated that he understood the concept of “old normal” compared with “new normal.” Our "new normal" is exactly how this week has been- and maybe even a little better. Jace received his Lumbar Puncture Monday, and he did awesome. He probably handled it this time the best yet. Matt and I barely have to hold his hand when they access him now, and by routine, he is one step ahead of the nurses. Just before they will pick up the blood pressure cup to put on his arm, he holds it out. Just when they are thinking about putting the heart monitor on him, he puts his finger out for them. He is a pro. We’ve also learned he cannot have the gas when they are putting him under anesthesia. He really prefers having them roll him back to surgery wide awake, and then putting him to sleep through his port access. This allows him to awake much easier and less sick.
Our doctor is also so smart to help us know that maybe Jace’s sick stomach is just heartburn. We have started Zantac again by routine, and it is helping tremendously. Jace has had an almost normal appetite since Monday, and he is much happier about this. Actually, we are all happier. There is that old saying about “If mom isn’t happy- then nobody is happy.” Well, at our house, it is Jace. When Jace is sick, it is hard for all of us to handle because it makes us so sad. But we haven’t had cause to be sad this week. We are close to having our old Jace back, and it is beautiful. Jace will finish his second cycle of chemotherapy next week with Peg shots into the muscles of his legs. We will be able to stay in Rexburg for this, and Jace is thrilled about not having to drive or fast (no anesthesia).
So today is another “new normal” day. We did homework for a few hours already this morning, and we are going to try a little walk in a while. Thank you all for your continued prayers. We feel them every minute. I guess it’s true that life has to change a bit for an individual to grow. Well, ours is nowhere close to the life we knew just two months ago- and we are growing in ways I never wanted to grow. But our “new normal” is precious and tender, and I’m so grateful for the testimony I have in a loving God who strengthens our family and makes it possible for us to survive this crazy new norm.
So today is another “new normal” day. We did homework for a few hours already this morning, and we are going to try a little walk in a while. Thank you all for your continued prayers. We feel them every minute. I guess it’s true that life has to change a bit for an individual to grow. Well, ours is nowhere close to the life we knew just two months ago- and we are growing in ways I never wanted to grow. But our “new normal” is precious and tender, and I’m so grateful for the testimony I have in a loving God who strengthens our family and makes it possible for us to survive this crazy new norm.
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Amy it was so good to see you today, I'm so glad you honked!;) I wish i could have given you a big hug, you guys are awesome and i am so glad he is having a good week so far.
ReplyDeleteWe are so happy that jace is doing so well with his treatments this week. we want you to know that our family still continues to pray for your family. You are in our thoughts each day. We would love to do something if we just new what?!?! Just know that we love you and are thinking of you. You are such great people and great examples of great faith. Thank you, Love the Twitchells
ReplyDeleteI know just what you're talking about. I have experienced several "new normals" throughout the last 6 years. I am so glad to hear Jace is doing well this week....I have substituted his Primary class several times the past 2 months...if you would like I could send home the handouts with Hayden or someone so Jace may have an idea of what we are learning. I just include his class with mine.
ReplyDeleteHey on the appetite note: the school is serving cinnamon rolls tomorrow, would you like a couple sent home?
As always GO! FIGHT! WIN!
Stay tough Jace! We love you so much! Thanks for being such a good example!
ReplyDeleteOn my printer in my office I have a little sticky note that says "When someone loves you the way they say your name is different. You just know that your name is safe in their mouth. When I say Jace or Hayden or Amy or Matt my mouth has that safe feeling. We love you so much. Hang in there.
ReplyDeleteYAY! :) I love having Jace back to "normal" whatever that is!! haha But, after all.... he is Leatham and Grover mixed, not sure how normal the poor guy can be HAHA :) When he ran up to me when I came to visit for a minute it felt like nothing was wrong! I cannot believe how one little boy can make us all so strong! Love you Jacer!! And Amy the chat with you was wonderful!! And did I mention anytime that seeing you on campus made my WHOLE day!! Mask and all!! Love you all tons and tons can't wait to see you tom!! :D
ReplyDeleteKort
Hey Jace, we just wanted to tell you hi!! You are still the toughest little man around I think. Have a good week!!
ReplyDeleteJace we are so happy that you are having a good week!! We hope to see you soon, it's been too long since we've seen your sweet smile! Love you buddy!!
ReplyDeleteThis post is a true blessing! We love hearing you "new normal" is going so well this week! Jace and Hayden you made Vai's day yesterday!!! Thank you so much for being so wonderful to him! You know my kids love you and look up to you, but now their best friends do to!!! You two ROCK!!!!
ReplyDeleteLove, Aunt Natalie
Jace, you are such a brave kiddo!!!
ReplyDeleteAmy,
ReplyDeleteThank you for continuing to share with us how Jace and your family are doing. You are an inspiration to each of us. You are in our thoughts and prayers. - Blake Meyers
Great update. Thanks. So glad things are going as well as they are. Tell Jace I wish I had hair as thick (or thin, depending on one's perspective) as his! ;)
ReplyDeleteWe are so glad that things are going well. Amy, I am so glad that you update this blog and let us know how things are going. You're amazing!
ReplyDeleteJace, you truly are Ironman!