In addition to the frozen weather we are feeling outside, Jace now has to take frozen popsicles to his treatments. During this 4th cycle of chemotherapy Jace receives a slow push of medicine in his port for which he has to have ice in his mouth during the entire time it is administered. I’m not a medical brainiac, but it has to do with not allowing blood into the capillaries of his mouth and throat while he receives the med into his veins. Otherwise, it is so brutal it would cause mouth sores the size of quarters. Have you ever tried to eat something cold for 15 minutes straight? Yesterday it took a bit longer than that because his port was a little positional and didn’t want to receive the fluid. By the end, Jace was near tears, but trying valiantly to keep chewing on the ice (the popsicles were making him gag, so we finally tried a cup of just plain crushed ice.) He was sick to his stomach, his whole body ached, and his mouth was frozen. Sometimes watching Jace be so brave is almost more than I can endure.
Since last Monday, Jace received PEG shots Thursday, and chemo again yesterday. Although we had three pretty good weeks before the 18th, the last week has been hard on our Iron Man. We met a guy at the doctor’s office who has been fighting Cancer, and he shared his positive attitude. He said, “I don’t have bad days. I just have good days, and better days.” This morning at 4 AM after helping Jace throw-up, cry a little, and climb into our bed to fall back asleep, I’m having a hard time saying yesterday was even a good day. I’m practicing the words though, so they sound convincing when Jace awakes. His legs are also really aching, which we know is a side effect of the Vincristine, and more often than not, he needs his dad to carry him out of chemo.
But, living in Idaho has prepared us well for the kind of deep freeze that makes the bones ache and the spirit wish for warmer days. We look optimistically toward spring when the snow melts, and Jace doesn’t have to freeze his mouth every week. We have been talking with him about spring things too… like baseball and green grass and warmth. He told us Sunday, “I really need to practice baseball. I don’t know if I can even catch any more.” Matt and Hayden assured him that he’s a natural, and he’ll be just fine. Despite the cold weather, warmer days are coming. I can feel them. Do I sound convincing?

Absolutly! :) love you guys!
ReplyDeleteWe are hoping for warm days as well. When the boy saw the pictures they both said how tough you are. Nakeaden looked and said mom that looks like it hurt, but Jace sure looks tough.Good luck this week, let us know if you need anything.We are thinking about you!!!
ReplyDeleteYou do sound convincing and your faith is what gets so many of us through this with you. Thank you for being who you are even with this going on. I know our family wouldn't know what to do without you and your family. We love you guys.
ReplyDeleteMatt, Betsy forwarded me the blog. Hope you and the family are holding up. Love the site. Thank you Amy for the updates. Our thoughts and prayers are with you.
ReplyDeleteJed Ashton
:( i miss my little buddy things have been so crazy i really need to get out there soon! love you guys so much!
ReplyDeleteHe is such a trooper. Give him and the rest of you hugs from us!!
ReplyDeleteBoy Jace all I could think was "brain freeze". You are such a trooper! Hang in there! Matt and Amy I hope for "better" days for you!
ReplyDeleteMy Prayer
ReplyDeleteGod, give me faith, all else will follow course.
Give me the heart that hopes when skies are gray,
Give me the eyes that smile along life’s way,
Give me the lips that whisper, “Do not fear,
God, through unseen by mortals, still is near.”
When from my lips come prayers that seem unheard
Give me the strength to make thy will my word.
What if I had to bear my pain alone?
Could not unto thee make my sorrows known?
Had not the sweet assurance of they care
Urging me onward, on to do and dare.
Just as a flower secluded from the sun
Gives up life’s race before it is begun,
without the knowledge of thy guiding grace
I would not dare to even start the race.
God, give me faith, all else will follow course.
(Author Unknown)
Keep the FAITH!!! Jace you'd still be the best baseball player even if you didn't throw a ball for a year!!! I have NO doubt about that!!! Love ya, Aunt Natalie
ReplyDeleteI keep hoping for warmer days too. A few more inches of snow and bam!, we should be ready for spring. Hang in there and keep having good days and much much better days. We love you and think of you often.
ReplyDeleteMatt, Amy, Hayden and Jace,
ReplyDeleteYou are in our thoughts every single day. You are brave. I think my days are hard, then I read your posts. Thank you for putting my days into prospective. My family sends their love and prayers as well. All of you keep up the good work. Oh and Amy warmer days are coming!!!! I believe that as well.
Love always,
Milt and LuAnn Webster
Carl, Desiree, Kelty, Kassy and Christopher Shively
Tom and Michelle King
Shad, Selina and Shon Thomas
Eric and Tabitha McCoy
Joseph Webster
P.S. Stay strong!!! I know that all of your are strong!!!
Desiree told me to write these jokes to you so you can have something to laugh at.
ReplyDeleteWhat's a pig that does Karate???
What do you feed an invisible cat???
Answers below:
A Pork Chop
Evaporated Milk
Amy it was good to see you the other day! You are so strong! Keep that positive attitude, Jace is a little fighter!
ReplyDeleteLove ya,
Kiri
Jace,
ReplyDeleteYou are so strong! There's no doubt that you will be ready to catch that baseball again when the time comes--practice or no practice. You keep up the good work! We love you all!
Stacie